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It’s Been a Long Time… | Blackness, Religion, Disability, and Where I’m Headed

Hey everyone,

So about a year ago, I started a blog here called The Psoriasis Club.

It was a space for me to share tips, advice, and stories on what it was like to be battling psoriasis so young. Last summer was a time where I’d become comfortable and accepted my psoriasis, knowing that it could potentially become a part of me forever. However, I no longer have psoriasis symptoms. And a sense of “normalcy” with my skin has become a new familiar that I quite like. Yet, I feel guilty saying that, knowing there are hundreds, thousands, millions of people who are still living with psoriasis. Just because mine healed…it doesn’t make their stories any less valid.

I’m not sure what to do with this blog. Though, I am still smiling at the comments that have gone forgotten from over a year ago. It was heartwarming to look back at my little following, and remember the passion I once had for this blog. So much has happened over the past year which has included me moving to California, picking up skateboarding, winning an artist grant for my work, reconnecting with old friends and seeing how their holding up during the pandemic, I fell deep into unrequited love, got a publishing deal, lost my publishing deal, went to a few concerts, and a festival, ate good food, rediscovered my love for guitar, traded fiction for self-help, all while trying to figure out a way to express my Blackness and support my other Black friends where each day the thought crosses our minds that we might not make it home. It’s a scary thought, but it’s our reality.

I felt with this blog that I was hiding parts of myself…the Black parts. The parts where I could talk about how psoriasis affected my hair and scalp, which is the crown for Black women. How defeated I felt knowing my hair couldn’t grow the way I had always envisioned it. How psoriasis was so misunderstood in the Black community, that I too often became the butt of jokes where friends would imitate me scratching my arms and legs, laugh, and go about their day.

I went through the journey of connecting with Christ, and became a reborn Christian, studying His word every day, until it didn’t feel right anymore. I still believe in God, The Holy Spirit, and Jesus. But I felt helpless in that I was only relying on God to change my problems. I felt like I wasn’t in control of my life. I now believe in The Law of Attraction, manifestation, and energy. As controversial as it is, it is my belief system.

Through the last year, my condition got progressively worse before it got better. I was wheelchair bound for most of the winter following the creation of this blog. I needed a wheelchair for most occasions. I hated myself for needing a wheelchair. I hated myself in general. I felt like a failure. The more I asked for help, the worst I sunk into a depression. I fell so out of love with myself and tried to seek validation in other people, yet reminding myself that there was no way I could be loved with a disability.

Early this year, my life hit rock bottom. A lot of family issues spiraled out of control. My condition worsened. I even made a little visit to the hospital after anxiety (and I think some bad food) twisted my insides out. Then in April, I celebrated my twenty-third birthday alone with Chick-Fil-A (pre-BLM movement and when I decided I would no longer be eating there), and drove across the country 4 days later to California. When I moved here, I was in a low spot, and even considered counseling. But after stumbling across a Tarot card reading that put me at ease, I was intrigued by a Tarot, LOA, and manifestation. I immersed myself so far into it that I invested in Tarot cards, crystals, and sage–which I love and use daily, all the while still reading The Bible and watching Steven Furtick sermons, which quickly became unsettling for me.

Then one day, it just didn’t feel right anymore, following both spiritual paths. So, I let one go.

Now, I’m currently in a limbo with starting a magazine, trying to publish new books all on my own, practice skating, meet new people, and staying healthy. This blog could go abandoned again for another year. Or I could change the name (feels most right) or this post could self-destruct and you’ll actually never see it.

For now, it’s safe to say that I have no idea what I’m doing. Is that ok with me? Not really. This week has been painful on a personal AND national level (Jacob Blake), with countless lives lost from either COVID or police brutality, it weighs on me heavy, along with everyone else. Never talking about my year as a whole like this is a new experience, but I know it’s worth it. It’s good to purge what’s on your mind. Going through this time has made me feel like I don’t have any say, my words don’t matter, and all of that really self-depricating stuff. I’m reading The Assertiveness Workbook and that’s been helping a ton with reprograming my subconscious mind.

Anyway, if you’re still here, thank you.

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Life with Psoriasis

my period essentials | clue app, pain relief, and period underwear!

Periods, on their own, can quickly become a nuisance when our lives are so busy and we are always on the go. For all hours of the day, there’s just this constant care and constant pain. But when you’re struggling to cope with your mental health (or have a physical disability, or both) your period may seem like a dreaded monthly task. I know when my period is on its way, my joint pain increases. I become more vulnerable emotionally and place myself into a dark space. My heating blanket becomes my best friend and my disability becomes a little bit harder to cope with when my period comes around. Realistically, periods are not happy and beautiful times where women are frolicking in flower fields with their tampons. It’s lying in bed with numbing cramps and having to spend time properly caring for yourself to prevent things like odor or infection. But with these four period hacks, I hope that this will make your “period week” (or longer or shorter), a little easier:

Track your period with an app!

I found that tracking my period with an app helps me prepare for my period every month, as well as help me understand my body more. I only just started tracking my period this year, and it’s helped ease the anxiety of not knowing when my period was coming and how to care for myself properly. Before tracking my period, I’d always be caught off guard by my period and then I’d have a panic attack because I felt underprepared. Once I started tracking my period, as well as listening to my body, then I felt I was in more control of something that was natural but inevitable. I use the Clue App (not sponsored, I just really love this app!) to track my period. With Clue, you’re not just tracking your period, but you’re tracking your mental wellbeing, your habits, and sleep…just to name a few things! Looking at how much I’ve been improving with stopping and listening to my body and look at how I care for myself monthly, it calmed me down and changed my perception of my own period.

Keep a heated blanket on yourself often!

Last winter, my mom sent me an electric blanket and it saved my life. My psoriatic arthritis/psoriasis becomes terribly inflamed in the cold. However, my roommate was from a colder climate and liked to keep the A.C. on in the winter. I struggled with the cold temperature of the room, often shivering under my heated blanket. We couldn’t seem to find a compromise on the temperature. While it was never hostile, I definitely suffered. Especially when I was on my period. Not ever being able to regulate my body temperature and constantly being cold, increased both my menstrual cramp pain and my joint pain. I am so grateful for my heated blanket and have noticed a difference in coping with both my psoriasis and cramps by wrapping myself in a heated blanket and setting the temperature to “high”. (The great thing about heated blankets is that you can set the temperature and a timer to both save energy and prevent injury if you fall asleep!)

Try some period underwear!

I never thought I’d ever wear period underwear, but I will say it was one of the greatest things I’ve ever done. While in Hong Kong, there wasn’t any overnight pads. Our only option was to buy thin daily pads and then these thick period “diaper-like” devices. I actually really liked them, however they were pretty tight and I needed to size up (but I think there was only one size but one size clearly doesn’t fit all!) However, I went to be comforted every night, not worried about if my pad was going to shift and I was going to bleed through my pajamas or sheets. They may be a bit uncomfortable because it’s a new feeling, but I was hooked once I wore these.

Keep water + pain relief by your bedside to save your energy!

There are some days when I take my period harder than others. When my joint pain is inflamed along with my cramps, it’s very hard to get out of bed. So, I keep everything beside my bed so I can save my energy to go eat meals or taking care of myself in other ways. I can also save my energy by using a really large water bottle so that I won’t have to keep walking up and down the stairs to refill my water bottle. I take Ibuprofen multiple times a day for either menstrual cramps or joint pain. Last night my cramps were bad and the worst they been in a while, I took three Ibuprofen and was able to sleep at a decent hour.

Comment below what your period essentials are!

OPTIONAL READ: *I’m thinking about starting a Bible study series! Let me know if this is something you’d like to read!* I’m so excited to announce that I am an affiliate of The Daily Grace! They offer Christian-based stationery that’s super cute, bible study tools, mugs, and even a magazine subscription service! Click the link below to take a cruise through their products and use it when you make a purchase. (*This post is not sponsored by The Daily Grace, but being an affiliate means that I make a small commission when purchases are made!*) : https://www.thedailygraceco.com/?rfsn=2946246.eb8c5) thedailygraceco.com/?rfsn=2946246.…! If you’re not ready to commit to anything, you can start with a FREE bible study and prayer guide!*

Love always,

-TPC

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my 5 favorite movies to watch on a self-care day

Hi there!

As you guys know, I love movies. I always have. The first movie I saw in the theaters was Lilo & Stitch (2001). I was amazed at how a story could be told on a screen, and not just in a book. In just two hours or less, when you watch a movie, you can be immersed in someone else’s story. And sometimes, there’s this magical moment where a movie really imprints on you and affects for the better. I’m still pretty traditional in that I cherish my DVDs. Don’t get me wrong, I love Netflix and I love the portability of Netflix. But my DVDs are forever. I’m the type of person that will see a movie a million times, and still buy the DVD. (Just as I’ll read a book at a library, love it, and will buy my own copy.) I picked five of my favorites to watch on a self-care day. Each day I take a few hours to myself to watch a movie with popcorn (see my disability morning routine) as it gives me a chance to rest my body and immerse myself in another narrative that isn’t me and my chronic illness/disability.

Photo by Charles 🇵🇭 on Unsplash

The Fault in Our Stars

Out of any and all of the movies I’ve ever seen in my life, I always go back to The Fault in Our Stars. I watch it at least once a month, I swear. It’s just something about that movie that’s so hopeful and magical, yet raw and real. It’s witty, and sad. I watch this movie when I’m happy or feeling low, in any mood. I love Shailene Woodley and pretty much every movie that she’s ever done. (See below to The Spectacular Now) I long to go to Amsterdam, because of this beautiful movie.

Me, Earl, and The Dying Girl

I watch this movie when I need a good laugh. But from the title, it doesn’t seem as if this movie is a laughing matter. But RJ Cyler as “Earl” keeps the movie lighthearted and fun, even when the topic of the movie is far from fun. The quick one-liners and awkward moments of silence depicts the reality of painfully quirky high school friendships. I first watched this movie after a friend recommended it in 2015 when it was first released and I bought the DVD winter break of that year. Ever since then, it’s stayed in my permanent collection and I just watched it last week!

The Spectacular Now

Another Shailene Woodley classic. I first saw the trailer for this movie on a cruise ship (while on family vacation) and I couldn’t wait to get back to the States to watch it. But when I got back to the States, I probably forgot to go see it. That was until I was in Wal-Mart and huzzah! There was The Spectacular Now movie on DVD. I got TSN DVD at the same time as getting the Me, Earl, and The Dying Girl DVD, and it was a tough decision–honestly-to pick which one to watch first. This movie also has an emotional place in my heart as I can relate to Shailene’s character, “Amy” on a few personal levels.

Up

I usually don’t cry in movies, but I teared up when I first watched Up. I also watched this movie in theaters with my mom and my best friend at the time. Sadly, we stopped being friends after we saw this movie (we didn’t have problems, but our families clashed for reasons we couldn’t control). I find this movie so pretty and colorful. I recently watched this movie with a close friend when I was at a low in my life, and it helped me. So, I guess this movie represents friendship and healing for me! And the ending is so satisfying.

Toy Story 3

All of my friends know that I have an obsession with Lotso (the bear that smells like strawberries. I know he’s evil. I know he’s the bad guy, but he’s my favorite. I have two plushies of him and a ton of Lotso merch!). Toy Story 3 just gives me the warm fuzzies, because of the ending. Woody and the gang just fight so hard, always stick together, prevailing against Lotso. I just find it to be so cute at the end when Andy gives the toys to Bonnie before he goes off to college. I thought it was the perfect ending. I like Toy Story 4, but I enjoyed Toy Story 3 much more.

Comment down below some of your favorite movies!

*I’m so excited to announce that I am an affiliate of The Daily Grace! They offer Christian-based stationery that’s super cute, bible study tools, mugs, and even a magazine subscription service! Click the link below to take a cruise through their products and use it when you make a purchase. (*This post is not sponsored by The Daily Grace, but being an affiliate means that I make a small commission when purchases are made!*) : https://www.thedailygraceco.com/?rfsn=2946246.eb8c5) thedailygraceco.com/?rfsn=2946246.…! If you’re not ready to commit to anything, you can start with a FREE bible study and prayer guide!*

Love always,

-TPC

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Travel with Psoriasis

Celebrating #NationalIceCreamDay in D.C. with Jeni’s!

#NationalIceCreamDay

Yesterday, we celebrated #NationalIceCreamDay with Jeni’s Splendid Ice Creams!

I’d found that they were “going on tour” in a cute ice cream truck and was heading to the northeast! I was pretty excited! Mainly, because I was looking forward to trying Tyler, the Creator’s “Snowflake” debut flavor (mint + white chocolate ice cream. Never was really a fan of mint ice cream, but was willing to try it just because of Tyler, the Creator). A man in front of us enthusiastically asked for “that mint flavor”, to which I perked up because I’m a huge fan of Tyler the Creator and and I looked forward to one of the employees sliding out a small cup of green and white ice cream. But unfortunately, it was unavailable and one of the employees said it was only at select stores. However, I was impressed by the friendly service of those working at the truck and how they even offered coupons to take! Nonetheless, there’s nothing much to complain about when you’re getting delicious FREE ice cream from a truck!

The Brambleberry Crisp flavor that I got was absolutely heavenly! It tastes just like a berry pie and had pie crust pieces in it. The berry filling was rich and sweet, but it wasn’t overwhelming. The ice cream was also smooth and creamy. This is a high quality ice cream that everyone needs in their life!

The truck was located at a local Whole Foods, which I hadn’t been in since late high school early college. (Surprisingly enough, one of my first dates was at a Whole Foods sophomore year of college. He took me to the hot bar, where I shoved Mac + Cheese into a recyclable container and ate it in his car. Very romantic, ladies! I know.) Whole Foods is very big, but it has everything you need. We also noticed a burger and fries station in-store. I also couldn’t help but pass up on the cute llama (or alpaca??) plant holder in front of me!

We eased our way on down to the wharf, but before reaching there, I snapped a shot of some local street art! Then we found this AWESOME pro-feminist Ruth Bader Ginsberg (my queen) jacket that was hand-painted!

We then visited a bookstore that had relatively every modern book that’s out right now. I was hoping for more of a vintage bookstore. Inside, however, were more up-to-date books such as Michelle Obama’s Becoming and Trevor Noah’s Born a Crime. There was a whole teen section that I fangirled over, but quickly realized that I’d read the majority of the books there, like All The Bright Places, Paper Towns, and Turtles All the Way Down. We left the store empty-handed, but wanted to stop by “milk” before we headed home.

I’d seen this place a million times on Instagram and Pinterest, so I was sort of brainwashed by the aesthetic of the place and what they offered from social feeds. The menu was a bit overwhelming for me, and I hadn’t noticed anything on the menu from vlogs or Pins. The employees that were working there also were maybe having a bad day and were just kind of not too nice. Plus, we found that a small cake (the one pictured below) was around $30. Even smaller items seemed overpriced. Going somewhere for the aesthetic and buying something overpriced can be an entire post in itself. (*Let me know if you want to know my thoughts on this!*)

The Wharf was beautiful and relaxing, but only for a few minutes. I enjoy being at the water. But because it was crazy, insane hot with a heat advisory, I began to sweat and my skin began to burn. (This is a common symptom of the psoriasis that I have. But it’s sort of triggering for me because it brings back dreadful memories of last year when I’d sweat and scratch and turn into a burning little ball.) At this point, I was about to have anxiety attack because I was beginning to scratch and I worried myself. We couldn’t find our car for a solid 20 minutes and I was slowly trickling down a spiral of panic and overheating, trying to ignore the stinging at my neck. Luckily, we finally found the car, and on the ride home, we passed by the Washington Monument! (*You can see my mom driving below! Teehee!*)

Comment down below if you’ve ever been to D.C.!

I am now taking submissions for guests posts on this blog! So, if you have psoriatic arthritis, a disability, chronic illness, or struggle with your mental health, I want to hear from you! DM me on Twitter or drop me an email at thepsoriasisclub@outlook.com, if you’re interested.

*Also: Recommend some YA books to me! Looking for some new summer reads!

Love always,

-TPC

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Life with Psoriasis

my (morning) disability routine: blogging, movies, and medication!

Not every day is exactly the same when you have a disability. But for me, it’s easy to fall into a routine. I find routines to be very comforting and safe. It gives me a sense of pacing and grounding in my life. When my routine is thrown for a curve (such as when I was in school or when I recently went on my graduation trip–where most things are very spontaneous–I find that’s where I begin to struggle. My routine is not glamorous, or Pinterest worthy, or aesthetically-pleasing. My routine consists mostly of trying to get through the day and onto the next one. But it’s mine…and I’ve accepted it.

Photo by Ioana Tabarcea on Unsplash

6:30 a.m.

My mornings usually begin a little something like this, minus the cat (I’m allergic + also afraid). For the past week, I haven’t been sleeping in. Instead, I’ve decided to take advantage of the morning. After graduation, I began sleeping in until 10 a.m. after going to bed at 3 a.m. I quickly realized that this was not benefitting me, so after my graduation trip when I received my job, I started waking up around 4:30 a.m. Since then, I’ve quit my job for my health (you guys seem to really gravitate to this post) and now I let my body wake up naturally. Usually around 6:30-7 a.m. with no grogginess. However, I do wake up with joint pain every morning and have to wrap myself in my heated blanket until further notice!

7-9 a.m.

I treat my blog, like a job, which then provides structure and routine for my day. After spending a little time pinning on Pinterest and responding to any DM’s or blog comments I may have gotten while I was asleep, I jump right into making my blog post for that day. When I had previous blogs in the past (I used to be a lifestyle blogger right before I got sick two years ago, but quit because it felt unauthentic), I planned every post. Now, I wake up and decide that day. I use Pinterest for inspiration sometimes, but I try not to put the pressure on myself to fit in with what everyone else is writing. I don’t focus on SEO or keywords. I write what I feel.

The first thing I do before writing a post is creating a blog graphic. I use Canva, and have for years. Their interface is incredibly easy and I like their wide range of social media templates, fonts, and colors. *This is not sponsored by Canva, but maybe one day! :)* I then choose any photos I’d like to use from Unsplash (a free photo website where photographers upload beautiful images that are perfect to use for either blogging or social media! No cheesy stock photos here!) After the blog post is written, I spend about another hour scheduling tweets on Hootsuite. I find Hootsuite to be the most effective for me because I can easily copy and paste hashtags from the previous day’s blog’s with their content calendar. Hootsuite also has a mobile app too, making it easier to post tweets if you’re unable to spend time promoting blog posts or other social media things. I schedule my posts and tweets for 11 a.m. EST, putting in as many hashtags as I can. Then, I schedule again for four more times throughout the day. After I started doing this and pinning my blog posts to Pinterest, I noticed my engagement increased little by little each day!

9-11 a.m.

Once everything is scheduled, I usually can relax for a while I enjoy a healthy breakfast. (see what i eat in a day or photo above) Around this time, I try to put my phone down if the arthritis in my hands begin to flare. I try to enjoy the news, but often times it’s pretty sad, so maybe I’ll watch YouTube videos. I really hate scrolling through social media because I found that I can’t enjoy my food when I do this, but it’s a bad habit I need to break.

I occupy myself until my post uploads and my tweets are sent at around 11 a.m. EST. There’s always a lot of anticipation for this. When I first started blogging (not too long ago), I’d constantly be checking my stats and wondering why no one was commenting AS SOON as my post was uploaded. Now I’ve become more relaxed, accepting comments gratefully as they come.

Photo by The CEO Kid on Unsplash

12 p.m.

From this point of the day onward, I don’t have much going on. The pain may or may not have reached a peak. Pins and needles shoot through my back, shoulders, and legs, which is why I get up so early and tackle blog things when the pain is just numbing and annoying. I take first dose of pain medication, which then makes me drowsy, and I fall asleep for about an hour. Then, the morning is over! For these past few days, the pain has been hard to endure. So I take it easy. We’re also experiencing a heat watch, which means it’s dangerous for babies, the elderly, and those with health conditions to even be outside. Frankly, I like staying on my couch. For someone with a chronic illness, this is an accomplishment for me: moving from the bed to couch as it requires to take the stairs, which then inflames my joint pain. I really only have the energy to watch a movie and eat popcorn, so I spend the rest of the day trying to tame my flares and distract myself.

I chose this photo as sort of a confidence booster for myself because often times I am called “lazy” by family members and friends for not being able to be “active” in ways people think I should be. It hurts, but I’m doing my best. That’s all I can do.

Thank you so much for reading! Comment down below one thing that you have to do every day!

I am now taking submissions for guests posts on this blog! So, if you have psoriatic arthritis, a disability, chronic illness, or struggle with your mental health, I want to hear from you! DM me on Twitter or drop me an email at thepsoriasisclub@outlook.com, if you’re interested.

I’m also thinking about creating a Twitter chat for us! Let me know if this is something you’d like to participate in.

Love always,

-TPC

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Life with Psoriasis, Mental Health

psoriasis confidence?: i’m still not comfortable with my body

It’s been hard to admit, but I’m still not comfortable with my body.

I still am not content with how I look.

And trying to heal from the scars it leaves behind had been a long journey that I’m still on.

my hand.

This is my hand. I took this photo a little over a year ago. I don’t know if it’s too noticeable, but here (spring 2018) I was already showing the early signs of psoriasis. However, I was misdiagnosed by a doctor, who called it “neurotic excoriations.”

My hands would be covered in these itchy and burning patches that would bring searing pain every time I washed my hands. Then it started spreading up my arms, across my chest, and then down to my legs. At the worst point, I was unable to shower, go outside, and then later…wear clothes.

With psoriasis came hyperpigmentation, skin splitting, and lacerations. From around late fall of last year to early spring of this year (and even now), I didn’t know what it was like to feel pretty. I avoided looking in the mirror. When I did, all I’d see were my dry patches and flakes. Once the lacerations healed, I was left with dark scarring on my back, arms, and legs from the damage psoriasis had caused. I’d wear hats and hoodies every day to cover up my body. I felt ugly, and still do–even to this day. My body confidence has never been high. I’ve always felt I was subpar to the other girls in school. I tried to change myself (see my self image story) to make myself like other girls.

I wasn’t going on dates. I wasn’t hanging out with friends. In high school, I spent a lot of time alone, with my self-depricating thoughts about how I looked. When I was diagnosed with psoriasis, everything heightened. I beat myself up for letting the stress get to me. I blamed myself for forming psoriasis, cursing my body and asking God why He placed me in my own mold. Last semester, I determined that I would fit better in with male friend groups. I struggled with dissociating from my female identity because I didn’t think I was worthy enough to “be a woman”. I wore baggy clothes and a backwards hat every day for entire spring semester, because I didn’t think I was worthy enough to be feminine. (Mental health is an interesting thing, and I’ve never spoken about my dissociation from my female identity until now.)

I don’t think I’ll ever be as comfortable with my body. When I asked The National Psoriasis Foundation about how to cope with the scarring, they said, “time.” Right now, time is all I really have. I try to keep my skin as moiturized, but I can’t help the flashbacks I get when I look down at my skin and am reminded of the days where I’d lie in my bed and my skin felt as if I was on fire, not knowing if I’d make it to see the next day.

There was a beacon of hope when Kim Kardashian West released body makeup, and showed the amount of coverage the foundation provided, especially for people with psoriasis. Kardashian West has struggled with psoriasis for years, often speaking on her struggles, but sharing how she’s now accepted it. I was interested in buying this foundation. But then I wondered if it would really help me gain confidence…if I was just covering up the scarring, without accepting it first?

While I haven’t fully accepted my body or come to terms with it, but I know that there’s a potential to get there.

Thank you all for encouraging me to write this. Comment below what you link about KKW’s “pro-psoriasis” foundation! *Also, do you guys like my new logo??*

Love always,

-TPC

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Life with Psoriasis, Travel with Psoriasis

what look for in a disability accessible amusement park

Amusement parks, while fun and exciting, can create either memories of happiness or dread for someone with a disability.

Psoriasis and psoriatic arthritis is more than a skin-deep condition. It goes beyond the skin layers, and what I’ve learned is that what lies beneath the skin is more of a struggle to cope with rather than the skin sores and dry patches themselves.

Even though I have managed to tame my psoriasis flares, the joint pain from psoriatic arthritis is something that creates daily challenges for me. I cannot stand for long periods of time, especially in the summer heat. Walking far distances in parks can quickly become difficult, especially when there are not ample benches. I overheat easily, because my skin is already warm and inflamed on any given day. I tend to have shooting pain in my neck, wrists, and knees. Most days don’t pass without a nap curled in my heating blanket. On days I’m unable to nap, I become irritable, which then increases the pain.

Last week, I travelled to three major theme parks to not only experience what they had to offer, but see if they were accessible for someone with disabilities. Although going to an amusement park used to be a no-brainer, now I am a little hesistant when traveling to locations that have spread out attractions and require constant, all-day walking.

Disability Access Passes

There is no shame in obtaining a Disability Access Pass. It will create ease in your experience, and if this is something that you find helpful, then don’t be afraid to share it with others. However, I wasn’t aware that Disability Access Passes existed until AFTER I went to Disney World, Legoland, and SeaWorld Orlando. Yet, I was happy that this service was offered. They are all pretty much the same across the board: those with disabilities are allowed to either enter in the exit of a ride and enjoy the attraction at their leisure without the strain of standing in line. Or, you’re assigned a return time to come back to avoid the long lines. I really wish I’d participated in these services, as each day became harder to navigate the park with stand-by lines. But here are some links to Disney World’s, Legoland’s, and SeaWorld’s DAPs:

Disney World

SeaWorld Orlando

Legoland (Hero Pass)

Ample Seating/Indoor Rides

I recommend looking at video walkthroughs of amusement parks before buying a ticket. If you’re unable to get a wheelchair (or think you may not need one, like I do, but wish I had), it’s important to know how the park is laid out. I’d been to Disney World quite a few times and had known that there was plenty of indoor rides and benches to sit on when my arthritis started to flare.

However, I was not aware about how large SeaWorld Orlando was and the lack of benches and sitting areas. SeaWorld Orlando is laid out in an interesting way that requires walking right under the sun. There are pockets of trees to create shaded areas, but the park is virtually uncovered. I only went on one indoor ride that provided temporary relief. However, it was a motion simulated ride that ended in subzero, artic temperatures called Empire of the Penguin. It was so cold that staff was wearing parkas. But cold trigggers my psoriatic arthrtis, so I was not happy when I got off this ride.

Yet, I had a more enjoyable time at Legoland Orlando. It had plenty of shaded areas covered by trees along with benches to allow me to stop along the way. Quite a few of Legoland’s rides either had covered stand-by areas or indoor rides. Two indoor rides that were so accessible, I was able to ride them for than once was the 4D theatre and the Ninjago ride. The 4D theatre had bubbles, water, and air-conditioning so it was a safe space to cool off. The Ninjago ride was very fun, but did get tiring as it requires to use your arms repeatedly to activate the 3D screen. You sit in a large car that holds four people and you wear 3D glasses. In order to participate in “battles” to have to swing your arms forward in chopping motions to send simulated objects that will hit things and earn points. Here’s a video example:

Inside the Magic

If this is something that may be difficult, no worries! You can sit an enjoy a smooth ride in air-conditioning.

Wheelchair Services

At all three parks, wheelchair services were offered. But it seemed as if SeaWorld was the least accessible for those in wheelchairs. There was a fair share of dips and hills on the walking paths that sometimes were expected and/or straining. Ironically, the least accessible area of the park was entering Seasame Street Land. I had a really hard time naviagating through this area as there is a large, downhill slope before you reach Seasame Street Land that was incredibly dangerous for those with and without wheelchairs. Also, the park is spread out, but packed. It’s a bit unnerving. Rides are in the back areas of the park, but when you reach that area, there’s a lot of other attractions that it becomes jammed with other park goers, making it practically inaccessible.

Legoland and Disney, however, were easier to navigate. There weren’t any significant hills I came across in either of the parks. The walking paths were wide enough for wheelchairs. While both parks are large, they are designed to comfortably fit wheelchairs, strollers, and walking park-goers without any added stress. (Expect for when Disney’s Magic Kingdom gets overcrowded for the fireworks, it may be hard to walk through, but this is at the end of the day!)

Overall, I would say that Disney World and Legoland have it down when it comes to accessibility services. SeaWorld does have room for improvements. Yet, all three parks offer something different, and fun for everyone!

Thanks for reading! Let me know if you’ve ever experienced an accessibility difficulties or would like to praise an amusement park for the services that they offer!

Love always, 

-TPC

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