Uncategorized

It’s Been a Long Time… | Blackness, Religion, Disability, and Where I’m Headed

Hey everyone,

So about a year ago, I started a blog here called The Psoriasis Club.

It was a space for me to share tips, advice, and stories on what it was like to be battling psoriasis so young. Last summer was a time where I’d become comfortable and accepted my psoriasis, knowing that it could potentially become a part of me forever. However, I no longer have psoriasis symptoms. And a sense of “normalcy” with my skin has become a new familiar that I quite like. Yet, I feel guilty saying that, knowing there are hundreds, thousands, millions of people who are still living with psoriasis. Just because mine healed…it doesn’t make their stories any less valid.

I’m not sure what to do with this blog. Though, I am still smiling at the comments that have gone forgotten from over a year ago. It was heartwarming to look back at my little following, and remember the passion I once had for this blog. So much has happened over the past year which has included me moving to California, picking up skateboarding, winning an artist grant for my work, reconnecting with old friends and seeing how their holding up during the pandemic, I fell deep into unrequited love, got a publishing deal, lost my publishing deal, went to a few concerts, and a festival, ate good food, rediscovered my love for guitar, traded fiction for self-help, all while trying to figure out a way to express my Blackness and support my other Black friends where each day the thought crosses our minds that we might not make it home. It’s a scary thought, but it’s our reality.

I felt with this blog that I was hiding parts of myself…the Black parts. The parts where I could talk about how psoriasis affected my hair and scalp, which is the crown for Black women. How defeated I felt knowing my hair couldn’t grow the way I had always envisioned it. How psoriasis was so misunderstood in the Black community, that I too often became the butt of jokes where friends would imitate me scratching my arms and legs, laugh, and go about their day.

I went through the journey of connecting with Christ, and became a reborn Christian, studying His word every day, until it didn’t feel right anymore. I still believe in God, The Holy Spirit, and Jesus. But I felt helpless in that I was only relying on God to change my problems. I felt like I wasn’t in control of my life. I now believe in The Law of Attraction, manifestation, and energy. As controversial as it is, it is my belief system.

Through the last year, my condition got progressively worse before it got better. I was wheelchair bound for most of the winter following the creation of this blog. I needed a wheelchair for most occasions. I hated myself for needing a wheelchair. I hated myself in general. I felt like a failure. The more I asked for help, the worst I sunk into a depression. I fell so out of love with myself and tried to seek validation in other people, yet reminding myself that there was no way I could be loved with a disability.

Early this year, my life hit rock bottom. A lot of family issues spiraled out of control. My condition worsened. I even made a little visit to the hospital after anxiety (and I think some bad food) twisted my insides out. Then in April, I celebrated my twenty-third birthday alone with Chick-Fil-A (pre-BLM movement and when I decided I would no longer be eating there), and drove across the country 4 days later to California. When I moved here, I was in a low spot, and even considered counseling. But after stumbling across a Tarot card reading that put me at ease, I was intrigued by a Tarot, LOA, and manifestation. I immersed myself so far into it that I invested in Tarot cards, crystals, and sage–which I love and use daily, all the while still reading The Bible and watching Steven Furtick sermons, which quickly became unsettling for me.

Then one day, it just didn’t feel right anymore, following both spiritual paths. So, I let one go.

Now, I’m currently in a limbo with starting a magazine, trying to publish new books all on my own, practice skating, meet new people, and staying healthy. This blog could go abandoned again for another year. Or I could change the name (feels most right) or this post could self-destruct and you’ll actually never see it.

For now, it’s safe to say that I have no idea what I’m doing. Is that ok with me? Not really. This week has been painful on a personal AND national level (Jacob Blake), with countless lives lost from either COVID or police brutality, it weighs on me heavy, along with everyone else. Never talking about my year as a whole like this is a new experience, but I know it’s worth it. It’s good to purge what’s on your mind. Going through this time has made me feel like I don’t have any say, my words don’t matter, and all of that really self-depricating stuff. I’m reading The Assertiveness Workbook and that’s been helping a ton with reprograming my subconscious mind.

Anyway, if you’re still here, thank you.

Standard
Journal, Uncategorized

how i bible study every day | what i learned after a week of bible study

I’ve committed myself to the journey—the journey of discovering my faith through the words of the Lord. I dedicate myself every night to reading the Bible and listening to God’s voice. Some days, his voice is louder than others, and sometimes I feel His presence stronger on certain days. But nonetheless, I hear Him and feel Him everyday. 

I’d always been interested in studying the Bible. But I just didn’t know how. I started listening to podcasts and searching up on YouTube on how to develop a Bible study routine. I managed to create a method for my Bible studying that I can follow every day without the pressures of taking notes in a certain way:

Scripture/Title 

Full Verse 

My interpretation of God’s message 

My thoughts and prayers to God

I find that in writing down the scripture and verse once full, I can remember is better. I use both my teen Bible and the YouVersion app on my phone to receive both translations of the Bible. I use the Common English Version in the YouVersion app, while my teen Bible is in the King James translation. I really listen to God’s messages and dissect His Words after I take down the scripture. I try not to put any of myself in the translation, because then I don’t think I’d be able to hear His full message. I leave my own thoughts to the section later on. (Which may sound like a contradiction, but at this point, I just translate almost word-for-word.) In “Thoughts/Prayers”, I become one with God. I write down all of my fears, anxieties, and hopes. I also thank God for what he has given me that day, even the small things. Such as, the sky I see that day, or a dessert I ate that day, or if one of my friends sends me a message. I thank God for everything because you only get today once. If I have sinners that day, I don’t hide it from God. I tell him. In doing this every night, it helps my anxiety from flaring at night because I’m overthinking everything that happened that day. I always add stickers too from my Ban.do collection!

What I Learned: 

  • I became consist in connecting with God when I dedicated a certain time to him. In my first few days of studying the Bible, I was studying really late at night…at around midnight. Some nights later. But with each day, I vowed to myself that I would study earlier than the night before. Last night, I studied at 9 pm. It doesn’t sound like a huge accomplishment, but I’m proud of myself for studying earlier than the nights before!
  • God has helped me become a better woman. He has lead me to faith-based reproduced made for women by women. When I started studying the Bible, I was very insecure. I hated the way I looked. I thought I could only be accepted by men because I didn’t wear makeup or dresses. I didn’t even have the confidence to. Before studying the Bible, I had no direction after graduating and the job I worked was not healthy for me. But God showed me that my worth was not expressed in the jobs I worked or the approval from my friends, but in how we connected and what I thought of myself. 
  • God is non-judgmental.
  • I should’ve saved myself for marriage. This is probably my one regret that I realize now that I’m on my journey of faith. Until now, I didn’t want to get married because I didn’t want to be committed to a man. I wanted independent. But I learned that being this way, and closing off myself to men, actually made me repel them. I still have crushes and I still want to be in love. But I just didn’t want commitment. Yet, I expected a man to commit to me, which was a contradiction. So, I’m slowly opening my heart and I think I may want to get married in the near future. 

I’m so excited to announce that I am an affiliate of The Daily Grace! They offer Christian-based stationery that’s super cute, bible study tools, mugs, and even a magazine subscription service! Click the link below to take a cruise through their products and use it when you make a purchase. (*This post is not sponsored by The Daily Grace, but being an affiliate means that I make a small commission when purchases are made!*) : MY AFFILIATE LINK! If you’re not ready to commit to anything, you can start with a FREE bible study and prayer guide!*

Thanks for reading, 

Twitter: @lepsoriasisclub

Pinterest: @thepsoriasisclub

Standard
Uncategorized

my 5 favorite movies to watch on a self-care day

Hi there!

As you guys know, I love movies. I always have. The first movie I saw in the theaters was Lilo & Stitch (2001). I was amazed at how a story could be told on a screen, and not just in a book. In just two hours or less, when you watch a movie, you can be immersed in someone else’s story. And sometimes, there’s this magical moment where a movie really imprints on you and affects for the better. I’m still pretty traditional in that I cherish my DVDs. Don’t get me wrong, I love Netflix and I love the portability of Netflix. But my DVDs are forever. I’m the type of person that will see a movie a million times, and still buy the DVD. (Just as I’ll read a book at a library, love it, and will buy my own copy.) I picked five of my favorites to watch on a self-care day. Each day I take a few hours to myself to watch a movie with popcorn (see my disability morning routine) as it gives me a chance to rest my body and immerse myself in another narrative that isn’t me and my chronic illness/disability.

Photo by Charles 🇵🇭 on Unsplash

The Fault in Our Stars

Out of any and all of the movies I’ve ever seen in my life, I always go back to The Fault in Our Stars. I watch it at least once a month, I swear. It’s just something about that movie that’s so hopeful and magical, yet raw and real. It’s witty, and sad. I watch this movie when I’m happy or feeling low, in any mood. I love Shailene Woodley and pretty much every movie that she’s ever done. (See below to The Spectacular Now) I long to go to Amsterdam, because of this beautiful movie.

Me, Earl, and The Dying Girl

I watch this movie when I need a good laugh. But from the title, it doesn’t seem as if this movie is a laughing matter. But RJ Cyler as “Earl” keeps the movie lighthearted and fun, even when the topic of the movie is far from fun. The quick one-liners and awkward moments of silence depicts the reality of painfully quirky high school friendships. I first watched this movie after a friend recommended it in 2015 when it was first released and I bought the DVD winter break of that year. Ever since then, it’s stayed in my permanent collection and I just watched it last week!

The Spectacular Now

Another Shailene Woodley classic. I first saw the trailer for this movie on a cruise ship (while on family vacation) and I couldn’t wait to get back to the States to watch it. But when I got back to the States, I probably forgot to go see it. That was until I was in Wal-Mart and huzzah! There was The Spectacular Now movie on DVD. I got TSN DVD at the same time as getting the Me, Earl, and The Dying Girl DVD, and it was a tough decision–honestly-to pick which one to watch first. This movie also has an emotional place in my heart as I can relate to Shailene’s character, “Amy” on a few personal levels.

Up

I usually don’t cry in movies, but I teared up when I first watched Up. I also watched this movie in theaters with my mom and my best friend at the time. Sadly, we stopped being friends after we saw this movie (we didn’t have problems, but our families clashed for reasons we couldn’t control). I find this movie so pretty and colorful. I recently watched this movie with a close friend when I was at a low in my life, and it helped me. So, I guess this movie represents friendship and healing for me! And the ending is so satisfying.

Toy Story 3

All of my friends know that I have an obsession with Lotso (the bear that smells like strawberries. I know he’s evil. I know he’s the bad guy, but he’s my favorite. I have two plushies of him and a ton of Lotso merch!). Toy Story 3 just gives me the warm fuzzies, because of the ending. Woody and the gang just fight so hard, always stick together, prevailing against Lotso. I just find it to be so cute at the end when Andy gives the toys to Bonnie before he goes off to college. I thought it was the perfect ending. I like Toy Story 4, but I enjoyed Toy Story 3 much more.

Comment down below some of your favorite movies!

*I’m so excited to announce that I am an affiliate of The Daily Grace! They offer Christian-based stationery that’s super cute, bible study tools, mugs, and even a magazine subscription service! Click the link below to take a cruise through their products and use it when you make a purchase. (*This post is not sponsored by The Daily Grace, but being an affiliate means that I make a small commission when purchases are made!*) : https://www.thedailygraceco.com/?rfsn=2946246.eb8c5) thedailygraceco.com/?rfsn=2946246.…! If you’re not ready to commit to anything, you can start with a FREE bible study and prayer guide!*

Love always,

-TPC

Twitter

Pinterest

Standard
Uncategorized

the same milk tea two years later | reflecting on myself

“Would I be friends with the person that I was two years ago?”

I ask myself this question as I walk up to a cafe I haven’t been to in two years. The first time I tried this milk tea, I wasn’t too much different than I am now. The first time I went here, I was in a nasty depression-anxiety cycle because I was undeniably terrified of studying abroad in Hong Kong alone, which meant I had to make new friends, live in a new place, eat new food, and leave my core group of friends in the States for two months. Over the weekend, I felt that same nostalgia of being sad walking in. As you know, I’ve been struggling lately, but somehow ended up being at the same place where my depression brought me two years ago.

The cafe itself is exactly the same. The tea tastes exactly the same. The same employees are there. Nothing has changed on the menu. It’s still a bit overcrowded and tables are placed randomly alongside a walk-up coffee bar. But it made me think about how a place can stay the same and the people can change within it. Everyone goes about their life, visiting the same places, but not as the person they were–but as the person they are now. And every time you visit a place, you leave your mark there as the person you were in that moment, and you’ll never be the same person in the same place twice. Life is beautiful and scary and ever-changing.

2017

When this photo was taken, I’d just been through a breakup. The breakup was toxic and hurtful. I completed a summer job, and felt comfortably financially. But mentally, I was not well. I numbed my pain in faking who I was online. Everything had to be curated. I couldn’t go anywhere without taking a picture and posted an edited photo. I spent so long editing this one that I stressed about the likes, hoping they’d reach a certain number. I escaped myself by becoming a “lifestyle blogger” trying to keep up with the ones who’d been doing this because it was their passion for years. (See my self-image story) I’d just deleted my high school Instagram to rid myself of the photos of my ex and I, instead of just taking the time to delete him away. On top of trying to keep up with appearances, the stress of obtaining a travel visa and the fear that I was going to hate Hong Kong caused my skin to begin to “breakout,” and I was starting to get itchy all over, but didn’t know how to control it.

Now, I’m in a much better place. I’ve been getting in touch with my faith. I’ve shifted my focus in what I want out of life and blogging. I’ve been discovering new coping mechanisms for anxiety and my depression. I’ve been enjoying outside more. I’ve been reflecting more. I was feeling so alone for the past few weeks, but yesterday, everything seemed to change. I reconnected with friends. I found happiness yesterday in reaching out for help, instead of being embarrassed about it. I went somewhere new (see celebrating #nationalicecreamday in d.c. with jeni’s!) and I feel like that relieved the fog that I had over myself for the past few weeks. I’ve accepted that I am no longer able to work because of my disability. Instead of letting it destroy me, I’ve been searching for some online opportunities, like applying for artists grants and signing up for affiliate programs. (I signed up for three last night! *Fingers crossed*) While I’m not perfectly content with where I am, I know I have room to grow, but I think I already have in small ways.

2019

To answer the question above, I do think I’d be friends with the person that I was two years ago, but I’d just worry about her. I’d worry about her because of the scars on her arms and her constantly teary eyes. I’d worry about her because her head would always be down. I’d worry about her because she seemed to smile all of the time, but never tell me how she’d feel. I’d tell her that she is not her Instagram feed, and that she is allowed to struggle even if her Instagram doesn’t show it.

*While writing this post, I just received an affiliate program offer! One that I was holding my breath on and really hoping I’d get it because the company because I really respect what they do and the services that they offer. I’ll tell you more about it when all of the forms are finalized!*

Comment down below a place that you visit often (or maybe not) and have noticed growth in yourself!

I am now taking submissions for guests posts on this blog! So, if you have psoriatic arthritis, a disability, chronic illness, or struggle with your mental health, I want to hear from you! DM me on Twitter or drop me an email at thepsoriasisclub@outlook.com, if you’re interested.

Love always,

-TPC

Twitter

Pinterest

Standard
Uncategorized

what i eat in a day | healthy + easy meals for psoriatic skin

Hi there!

While I am currently struggling a bit with my mental health, and sometimes eating seems like a big task, I realized I had to find joy in the little things. Such as getting creative with food. I just recently quit my job for my health, so now I have more time to focus on myself. I don’t live on my own, because I attempted to do so last year, and it negatively impacted both my physical and mental health. So, I’ve moved back home. On this day, my mom and I decided to get creative with lunch and it turned out surprisingly good!

Breakfast

green smoothie + frosted rice krispies

Breakfast is relatively the same every day. When I was working, all I’d have time for in the morning was cereal. But then as soon as I’d leave my house (at 5:30 a.m.) I’d already be starving on the drive to work. I’ve been wanting to add more to my breakfasts, so this morning I made a green smoothie. I first started making smoothies last year when I used to live on my own. I was obsessed, and would drink one three times a day with my meals. My roommate even started making them with me. I use Dole frozen fruit, which I find to be the most convenient. This one is a mix of pineapple, apples, mangos, spinach, and pineapple juice (my go-to combo). I added a vegan protein powder that sort of ruined the smoothie, was gritty, and I wasn’t used to the texture. But without the powder, it’s very good. When I was a kid I loved the Rice Krispie Treats cereal, but I haven’t found it in years! Frosted Krispies is similar, but definitely not the same.

Lunch

baked beans, ground beef, rice, and corn

Lunch got a little interesting as we decided to experiment. For years, my mom has always made plain baked beans with hot dogs. That was a go-to meal for us. But I dated a boy who’s family used to always put ground beef in their baked beans for special dinners at their house on Sunday. I tried it once and instantly fell in love. Years later, I convinced my mom to do the same. I was reminiscing about when we always used to go to a restaurant called Rosa Mexicana and gorge on their Mexican street corn. We didn’t have all of the tools to make it, but we improvised. It ended up being a hit and we ate it so quickly. No leftovers here! Beans + meat provide protein!

Dinner

tilapia, peas, and mac + cheese

Fruits, veggies, and fish all have anti-inflammatory properties that help tame psoriasis. Fish has omega-3 fatty acids that help build a weakened immune system. I’ve always loved the flavor of fish, peas, and mac + cheese. I’ve been eating this same meal since I was a kid. There’s just something about it that gives me a warm and cozy feeling. Knowing that it’s helping me tame my psoriasis is even better. Did you notice that we drink a lot of lemonade?

Thank you so much for reading this post! Hopefully, this will give you some meal ideas if you have psoriasis, or just looking for some healthier meal options versus going out to eat. Comment down below some of your favorite childhood meals.

Love always,

-TPC

Twitter

Pinterest

Standard